Metallica..sweet smell vs metal taste

Living with diabetes is an on going step in our daily lives. Like brushing your teeth, we check out sugar and ketones daily to ensure that everything is in place. once in a way when levels get wonky, one of the side effects is metal mouth. We tend to take our sense of taste for granted — until something goes wrong. A metallic taste in the mouth is a form of dysgeusia, an abnormality of the sense of taste. There are many possible causes of having a metallic taste in your mouth, ranging from medicines to systemic disorders to environmental hazards.

if you are experience a weird taste in your mouth or a loved says your breath smells sweet. call you doctor. PURPLE-METALLIC-LIPS

I feel like drug user, wait I am

Its’ been 2 weeks since I was diagnosed and learning to inject myself with a life saving drug was so surreal. I went from eating and doing what ever I wanted to a carb-coubting, basal reading finger pricking, one touch ultra toting, vial slinging drug injector. Yes, I am a drug user, but of the pharmaceutical kind… the life saving kind. The kind of drugs that is needed to live a better life. Fuck… how the heck am I gonna get use to sticking needling in me 4-5 times a day to live. I have bruises, all over my stomach from hitting veins as I learn to give myself the much needed injections. ugh….

 

Positive Advice

In that first year, my family and I were learning this new language of diabetes, including insulin-to-carb ratios, basal rates, carb factors and blood sugars.  I am able to share what I’ve learned with other newly diagnosed adults who are now where we were ten years ago.

Here is the diabetes “advice” I would give myself if I could go back in time:

  • Relax, you’ve got this.
  • There are going to be high blood sugars and low blood sugars, deal with them and move on.
  • Don’t be afraid of walking to the park that’s a half mile from your house for fear that you will have some major diabetes emergency.
  • Eat the sweet every now and again
  • Bake cookies at the holidays and make a good guess as to the carbs. The fun is in the baking.
  • The A1C is not a judgment of your management abilities or weaknesses, it take practice
  • Become an expert; knowledge is power.
  • Ask others for help even if you think you can do it all yourself.
  • You know your diabetes better than any medical professional could.
  • Don’t hesitate to do things.
  • Roll with the changes. Don’t be afraid to give something a try. Embrace technological advances.
  • It’s not going to be all sunshine and roses. But there is still quite a bit of sunshine.
  • There will be periods of time that you don’t even give diabetes a second thought. As time goes on, it fades into the background and doesn’t always seem so immediate.
  • You can be whole, even with diabetes.
  • Celebrate with a sweet treat.
  • Relax. I know I said that already, but it’s worth repeating.

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Pincushion, my new reality

Waking up to the realization that I will be taking daily injections, prick my finger 4-6 times a day, use a BG meter to check, Ketones stick,  and 32 gage syringes and keep vial of insulin with me at work, was not my idea of a Happy Birthday.

So off to Oschner medical center with my mother I go to find about this newly diagnosed disease I have and how to get rid of it. I was in for a rude awakening. Diabetes, depending on your type, is non-reversible. First step was to figure out how in the hell I got this. We met with Dr Amelia Basa, who took my initial information, stats, weight and the like.  Oh yes, forgot … so the original reason I went was to have a physical. It was because I went from a healthy size 12 to a very skinny size 0/2 based on Banana Republic sizes in a matter of months. I had a voracious appetite, extremely thirsty and had to pee all the time. My vision was getting ify, I felt hormonal all the time, which later turned about to be irritability due to chemical changes in my body. Also just 2 days before, I came home from work at 530 pm one to lay down and did not wake up til the next day for work. My mother, for obvious reasons, freaked out and commands me to make an appointment. So I did… glad I did but shit, I got a gut punch

 

After all the initial tests….they said I was a type 2 diabetic, based on my age. I was almost 30, how can I become diabetic at this age. There were no family indicators, no where. So my gross introduction for a new life, the give me metformin (glucophage) to control my blood sugar levels, test 4-5 times and day and exercise for 30 mins a day. Yea, that did not work. So back to Ochsner I go.  This time, I met the esteemed Dr Vivian Fonseca. He took one look at my information and said we need to retest. these results, your history and your levels are not responding to the medication. So off to the lab I go, for a c-peptide test to measure how much insulin is being produced or not.

The results were in.. I am delifnelty a Type 1 diabetic. I suffer from hyperglycemia, an abnormally high blood glucose (blood sugar) level in the blood. Severely elevated glucose levels can result in a medical emergency like diabetic ketoacidosis(DKA) or hyperglycemic hyperosmolar nonketotic syndrome (HHNS, also referred to as hyperglycemic hyperosmolar state). Which in my case, I was in before when the nurse called and wanted me admitted. The nurses and doctors feed me with a plethora of information like, “Normal ranges for blood glucose  in general like a fasting (early a.m. before breakfast) glucose level is considered normal if it is between 70-100 mg/dL. Glucose levels may rise slightly above this range following a meal. Random blood glucose measurements are usually lower than 125 mg/dL”, however since being diagnosed some 15 year ago, those number have shifted and are lower, to ensure the health of the patient and lower the risk of overall health concerns.

hyperglycemia-s1a-facts

Severely elevated blood sugar levels can result in a medical emergency (“diabetic coma“). This can occur in both people with type 1 and those with type 2 diabetes. People with type 1 diabetes may develop diabetic ketoacidosis (DKA), and those with type 2 diabetes can develop hyperglycemic hyperosmolar nonketotic syndrome (HHNS, also referred to as hyperglycemi hyperosmolar state). These so-called hyperglycemia crises are serious conditions that can be life threatening if not treated immediately. Hyperglycemic crises cause about 2,400 deaths each year in the U.S.

Over time, hyperglycemia can lead to damage to organs and tissues. Long-term hyperglycemia can impair the immune response, leading to poor healing of cuts and wounds. It can also cause nerve damage, vision problems, and damage to the blood vessels and kidneys.

So for now, a pincushion I have become. My fingers hurt, they are black and blue and I still done know why this is my new life.

The Journey Begins

Thanks for joining me!

I’ll never forget that day. The phone rings to say, Nicole you need to check yourself into the hospital dear, your blood sugar is at 1500. My response, “well I’ll see you tomorrow”. It 5pm and if my sugar is that high, you all should have called my hours ago to have me admitted.

That was 1st introduction to diabetes, just 2 weeks before my 30th birthday.
Happy fucking Birthday to me. Could I be so lucky? Heck NO!

I pack up my stuff and left work. I was a catering manager for the Aquarium in NOLA (New Orleans). I moved there just after the 9/11 when the hotel industry tanked. Shit I was determined not to let this ruin the rest of my day. Can you smell it, the  sweet smell of beignets and coffee filling the air as I leave work, get my car and make my way home to Metairie. Man I could go for some right now, but I have to so the responsible thing and tell my mother I am now diabetic, as. try and wrap this around in my mind.

I have a flood of emotions, scared, pissed, pessimistic, optimistic and why did this happen to me. There is no evidence or a trace of diabetes in my family. How in the hell did I get this and how do I get rid of it… Well I was sure in for a rude awakening…..

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